Thursday, July 09, 2020

Hello darkness, my old friend...

Several people have asked me how I’m doing, following yesterday’s post. I found myself in tears again this evening, once I was alone and the kids were in bed. I caught my inner dialogue saying “you’ve had your **** together today, but it’s okay to not have it together now”. I found myself thinking that this weather perfectly mimics how I’m doing.

I’m like the river not too far from my house. The worst of the storm has passed, but the river is riding high - the water is just below the bridge level. It won’t take much to make the water rise up over the bridge, and wash it away. I can’t concentrate on anything remotely requiring a thoughtful, considered decision or response. I tried to prep my sourdough starter to bake some bread, thinking that the physicality of kneading bread would help - instead, I ended up killing my starter. I baked it accidentally. (After feeding it, because the house was so cold, I thought I’d put it in the warming drawer cos that’s a nice warm spot, right?) Why? Because I can’t think straight about anything that requires a thoughtful or considered decision. I went shopping, to just get “a few things” - I even had a list! - and ended up spending far more than was necessary, because I couldn’t make appropriate choices. Actually, I’m surprised I didn’t spend more on comfort items and food. People have been messaging me all day, and all I can respond with is “thanks”, because I don’t have the energy to think of anything more appropriate to say. I misread an email about my son’s aftercare, so left him stranded at school (and got yelled at by the principal for doing so). I forgot my daughter’s orthodontist appoinment yesterday, and then nearly forgot her rescheduled one today (fortunately for me, they had a staff member who tested positive, so called me to cancel the appt an hour beforehand - saved by the bell, what?) I could go. There’s a long list of decisions not made, or bad decisions made, or just the general inability to think straight about anything for the past 2 days.

And then it hit me - I’m grieving. These emotions are not just guilt about moving my mother into an institution. This is full blown grief: grief for the woman who birthed me and raised me, and now is no longer herself; grief for the broken promises; grief for the lost relationship; grief for the fact that, because of level 3 lockdown, I can’t even go to visit and give her a hug; grief for the fear and anxiety she is feeling in her new environment, that she can’t adequately express because she no longer has that capacity; grief for the role reversal and having to be the adult who carries the can...

Having lost my daughter 13 years ago, grief is a familiar companion, an odd sort of friend. I would love there to be a quick fix, a quick way to lower the level of the water flowing under the bridge, an outlet for my grief that would allow this pain to dissipate quickly. Experience tells me that time won’t heal this wound, but it will make it easier to live with. There are now 2 gaping holes in the floor of my internal living room - one I’m very used to walking around rather than falling into. In time I’ll learn to walk around this new one too. And, again, as I’ve learnt, I will have good days where I won’t fall in at all, and other days where I will fall in a lot. Such is the nature of grief. 

And I recall that I don’t need to have the energy to see people or talk to them. I don’t need to have the words to say. I don’t need to be able to make decisions. I don’t need to get my **** together. It’s okay to not be okay. This too shall pass.

Lord alone knows what I’m going to teach my matrics tomorrow - because I haven’t prepped a lesson for them, because I don’t have the energy to do that.. Thank God for years of experience - I know that I’ve got this. I am good at flying by the seat of my pants, and so I’m not worried about tomorrow’s lesson. I’m more worried about the hours I’m not teaching, but have to be at school. Being alone in my office is not going to be good for me, but neither is being with others that I really have no energy for. Maybe I’ll give myself permission to read at work, to take a book and escape into that for a few hours. (Maybe I’’ll even try prepping a proper lesson!)

Wednesday, July 08, 2020

Is there someone more adultier than me in the room?

I am ready to run away, to hide from the world, for as long as it takes for a more adultier adult to show up. Today, I moved my mother, who has Alzheimer’s, into care. 

When I was a young adult, she and I moved my gran from PE to CPT. My gran had Alzheimer’s and by the time we realized what was going on, she had deteriorated significantly. Moving her to CPT was by far one of the most difficult things I’ve had to do. My mom took a week to pack up my gran’s house, and then I went up to help drive her back. My gran was so aggressive and point blank refused to move. The only way we could move her out was to sedate her, and then get the fire department to help us hoist her into the back of a bakkie. It was traumatic and horrible, and the months that followed, while she lived with us, were incredibly difficult.

My mom’s disease has progressed to the point where there are moments each day when she no longer recognizes me. Sometimes when we give her medicine, she thinks we’re trying to poison her. Some days her conversation makes no sense at all.

When a space opened up at a local care centre, and lockdown eased enough for us to move her in, we jumped at it. Today it was my task to talk to her about moving, and then to move her in. Given my experience with my gran, I was really dreading this. However, when I arrived this morning, she was sufficiently lucid that I could talk to her without drama. In her lucid state, she agreed that moving was the right thing to do. As the day progressed though, she regressed and became confused, then scared, then angry. The drive from her home to the centre was ... heartbreaking. My mom said things that I can’t bear to repeat. I just kept telling myself that this wasn’t really her, that it was her fear speaking through the disease. But they hurt, all the same.

As wonderful as the staff are, her room isn’t as comfortable as her home. She doesn’t have all the comforts she’s used to. She doesn't have her cat, or her garden, although she has the centre cat and the beautiful garden at the centre. I feel terrible that she doesn’t have her TV, or her own bathroom. We can’t afford anything more at the moment (especially if she’s going to live for several more years).

I’m not allowed to visit her, because we’re still under level 3. That slays me! I want nothing more than to spend some time with her every day, to help her feel more settled and ease the stress of moving. But that’s not going to happen for a while. 

So as I drove away this afternoon all I wanted, after being the adult in the room all day, was to have someone more adultier than me take over. But there isn’t really anyone else who can make these decisions for me, or who can help. While others can stand with me, and support me, only I can actually walk through this. And this is hard. So hard.